A Parkinson's recovery journey

Taking on a stubborn obstacle

[Updated – 5/1/22]

As promised, here's how I've been dealing in recent months with the fear of a recurrence of the medical issue I detailed. As mentioned, most of my work with it has involved some blend of CBT and the distinctive exercises of the JWH protocol. Though few readers are likely to have to contend with exactly the same fear, I hope outlining this process may provide ideas to help others contend with their own fears.

So I boiled the fear down to the thought: “It could happen again, and it could kill me.”

This dysfunctional thought required some helpful, rational thoughts to counter it. I tried out a variety of them along the way. Ultimately they came down, more or less, to the following lists. I'll not bore you with the details underlying some of these counters (e.g., detailed reasons to believe a recurrence is unlikely, preventive measures I am taking...):

Standard style CBT counters

Thoughts directly concerning letting go of the fear

Thoughts of other sorts

So those are the primary CBT and related counters I've used regarding this issue. Since there are quite a few, I haven't often tried to run through all of them at one time, but have instead emphasized those that seemed good most helpful at a given time. This work has been beneficial, perhaps even essential, as an adjunct to the core exercises of the JWH protocol, in working my way back toward a solid feeling of safety. For a good deal of material on self-administered CBT, see this prior post.

But it's a tricky issue, rather subtle but pernicious. For instance, I've had the distinct impression the fear has often been habitually activated as I have approached turning off pause. My mind flips to a quick visual image of myself experiencing an abdominal pain, along with a kind of somatic memory of the pain. And it's been my impression that this has tended to prevent pause from successfully turning off. To counter this habit I've been applying variations on the notice-shift-rewire technique linked to in this prior post.

Always changing

That said, my process always seems to be evolving, and I have recently been mulling over the possibility that I have now spent more than enough time with such CBT-style counters to this one fear. So, spurred by the relatively long stretch I have lately spent on pause, I have just recently returned to a strong emphasis on the centrality of the core exercises of the protocol. After all, those exercises should, in theory, be enough in themselves to promote a sufficient sense of safety. And they were my main focus the last few times I turned off pause. (I'm even considering the possibility that it may be largely other issues that have lately been keeping me on pause.)

As I write this my main focus is twofold, both elements emphasizing my relationship with my invisible Friend: First, I'm trying to immerse myself in the realization that I can feel safe with my Friend to talk with a level of spontaneity that has been generally a bit foreign to me. Second, I'm reinvigorating a focus on letting my Friend guide me as completely as possible. So the journey continues...